My wife is in a rare group of people

T

thatguy2

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Smitty335

Smitty335

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My wife has a rare form of Alzheimer's that is genetic and starts in the mid to late 30s. We were lucky to get plugged into the folks at the DIAN Registry. This type of Alzheimer's affects less than 1% of the population. We were accepted into a drug trial. Last Oct we went to Indianapolis as IU was the closest research center accepting patients. After MRIs, PET Scans, a lumbar puncture, and cognitive testing she was given the first dose of Lecanemab. A research nurse comes to our house every 2 weeks to administer it. Last week we went back for the same battery of tests. She became the 80th person in the world that is getting Lecanemab and either E2814 or the placebo. It's double blind so we won't know. Pretty crazy to think how lucky we are to get into this program. Even though it isn't life saving, we hope it helps the next generation.
I totally missed this. What is her name? I'll add her to my prayers and to our Men's group this Tuesday.🙏🙏🙏
 
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